I met Jennie Rosecan in an online support group for parents of children with Attention Deficit Hyperactivity Disorder (ADHD). We both have daughters with ADHD named Ava and Eva. But that’s where their similarities end.
My Eva is loud, disruptive and uncooperative, which is what most people associate with this neurodevelopmental psychiatric disorder. Rosecan’s Ava, on the other hand, is emotional, forgetful and unfocused.
Even though both girls displayed symptoms from an early age, my Eva was diagnosed at age five, while Ava wasn’t diagnosed until the fifth grade.
“It’s a huge problem,” says Dr. Doron Almagor, chair of the Canadian ADHD Resource Alliance (CADDRA). “Girls with ADHD are often missed and misdiagnosed right up to adulthood.”
“What tells us that we’re missing diagnoses in many of the girls is by the time you get to adulthood, it’s more equal [between men and women],” says Heidi Bernhardt, president of CADDAC. “We know that ADHD doesn’t just come about later in life. It’s always there.”
“Boys are more than twice as likely as girls to be diagnosed.”
I started getting notes home from her teacher in junior kindergarten that progressed to phone calls and meetings on how to better manage her defiance and incessant movements. She constantly makes loud noises and disrupts the class.
It took us six months to get an appointment with a specialized pediatrician who finally diagnosed her with severe ADHD just prior to the start of grade one. It’s a huge struggle and my husband and I are often stressed and exhausted, but as hard as it is, we’re the lucky ones.
“As human beings we pay attention to the squeaky wheel because that’s what’s annoying,” says Bernhardt. “If you’ve got 30 plus kids in your classroom the ones that draw your attention all the time are the ones that are going to stick out. Often the quiet, day-dreamy girl at the back of the class just gets labelled as not too bright or unmotivated when the absolute opposite could be true.”
And that was the case with Rosecan’s daughter Ava. She came to the attention of her teachers in the third grade due to poor school performance. Ava was getting Cs and Ds when her teacher knew she could do better.
Following an assessment, she was diagnosed with a learning disability. But despite modifications to her learning plan, she continued to struggle.
It wasn’t until Ava’s fifth grade teacher cornered Rosecan in the hallway, informing her that Ava was failing that Rosecan took further action and got her re-assessed. She was shocked when the results came back. Ava had been misdiagnosed.
She didn’t have a learning disability. Ava had ADHD, the predominantly inattentive sub-type.
“As human beings we pay attention to the squeaky wheel because that’s what’s annoying.”
Turns out, my Eva is a bit of an anomaly. According to CADDAC, most girls are like Ava and present with inattentive ADHD. The symptoms include:
- Not willing to take risks and easily discouraged
- Easily overwhelmed
- May be under active
- Anxious and depressed
- Anxiety around school performance
Even girls with the hyperactive and impulsive types of ADHD tend to present their symptoms differently than boys including:
- Over talkative
- Risk taking
- Unable to keep up with workload
ADHD looking different in girls than in boys might have to do with how girls are socialized but it is also tied to the differences in their brains.
Lisa Jacobson is one of the authors of a 2015 study published in the “Journal of the American Academy of Child & Adolescent Psychiatry,” which looked at the brains of children with ADHD.
“The white matter underlying the basic primary motor cortex was different in boys with ADHD relative to girls with ADHD. Whereas, among girls, the abnormalities were in the prefrontal regions, an area that supports motivation and emotional regulation.”
“Even girls with the hyperactive and impulsive types of ADHD tend to present their symptoms differently than boys.”
This will definitely benefit girls in the long run. Misdiagnosing or missing girls with ADHD can have drastic consequences.
“They can end up later in life with depression, anxiety and substance abuse because, if they’ve been undiagnosed, they’re going to have a higher rate of school failures, relationship failures and an increase in risk-taking behaviour,” says Dr. Doron Almagor of the Canadian ADHD Resource Alliance.
Sarah Fader, the founder of Stigma Fighters, a non-profit organization, knows this all too well.
“From the time I was 12 I started to notice symptoms of ADHD but possibly earlier,” says Fader. “I remember having difficulty reading. I remember really struggling in high school in particular. I would have to finish books in a really short amount of time. It was frustrating and I felt a lot of shame. I developed anxiety and depression and wasn’t diagnosed with ADHD until college. Having that self-knowledge would have been useful to me earlier on because it would have allowed me to get accommodations that I would have needed.”
“ADHD looking different in girls than in boys might have to do with how girls are socialized but it is also tied to the differences in their brain structure.”
For parents wondering if their daughter has ADHD, Ava’s mom has this advice: “Realize that there is so much more to ADHD than just the typical presentation of hyperactivity and that it’s not a result of bad parenting or poor diet or environment, certainly all those things can help, but ADHD is not caused by that.”